SICKLE CELL DISEASE ASSOCIATION OF AMERICA

HCR · Health Issues

Potential legislation on hospital emergency department care of people with sickle cell disease Education and support for Congressional Sickle Cell Disease Caucus

MMM · Medicare/Medicaid

Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721/H.R. 5178) Medicaid eligibility and coverage for needed services for people living with sickle cell disease Implementation of Medicaid Community Engagement provisions of HR 1

Literal federal measure citations: S. 721, H.R. 5178, HR 1

BUD · Budget/Appropriations

Funding for federal sickle cell disease programs Funding and staffing for the CDC Division of Blood Disorders and Public Health Genomics Funding for and continuation of HRSAs Sickle Cell Disease Newborn Screening Follow Up Program FY27 House and Senate Labor-HHS Appropriations

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Policies related to Medicaid and ACA Marketplace plans

Literal federal measure citations: H.R. 1