BUD · Budget/Appropriations
-H.R. 1968, Full-Year Continuing Appropriations and Extensions Act, support funding for epilepsy programs and research including $12.5 Million for the CDC Epilepsy Program; $48.9 Billion for the National Institutes of Health; $680.4 Million for the BRAIN Initiative; $26.8 Million for the VA Epilepsy Centers of Excellence; and within the Congressionally Directed Medical Research Programs: $12 Million for the Epilepsy Research Program, $8 Million for the Tuberous Sclerosis Complex Program, and $175 Million for the TBI and Psychological Health Program.
Literal federal measure citations: H.R. 1968
HCR · Health Issues
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatments including through preservation of Medicare Part Ds Six Protected Classes policy -Reauthorization of the Advance Premium Tax Credits -Support patient-centric implementation of Medicare Part D out-of-pocket cap and the Medicare Prescription Payment Plan -Urge patient priorities like standardized health plans, network adequacy, and keeping insurance brokers accountable in the ACA marketplace exchanges. -Ensure continued access to needed healthcare via telehealth including at the VA and prescribing of epilepsy medications that are controlled substances -Requests to join the Congressional Epilepsy Caucus. -S. 1024/H.R. 2151, Seizure Awareness and Preparedness Act, support passage -Support protecting the current structure of the National Institutes of Health, including opposing changes to the Facilities & Administrative Cost Reimbursements -Support legislation and regulations to reduce the burden of medical debt -S. Con. Res. 7/H. Con. Res. 14, Oppose any cuts to Medicaid -Express concern with HHS Reductions in Force related to epilepsy -Oppose changes to the regulatory process and limits on opportunities for public comment -Support PBM reform, including the Safe Step Act -Support programs that assist caregivers
Literal federal measure citations: S. 494, H.R. 1189, S. 864, S. 1024, H.R. 2151, S. Con. Res. 7, H. Con. Res. 14
CIV · Civil Rights/Civil Liberties
-Support implementation of disability provisions in FAA reauthorization
