Rare Disease Initiatives. Priority Review Voucher Reauthorization. Newborn Screening. Genetic Testing Access. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.
2025 · 4th Quarter (Oct 1 - Dec 31)
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
Filed by NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD).
Open official filingSource-reported fields
Filing overview
- Type
- 4th Quarter - Report
- Posted
- Jan 20, 2026
- Income
- Not reported
- Expenses
- $30,000.00
- Filing UUID
- 2df866d6-dd8c-459e-b13b-bbfa1a19bbab
- Termination date
- Not reported
Expense method: B
Literal source text
Lobbying issues and bill citations
Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.
Pharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. H.R.7383/S.1214: RARE Act. Inflation Reduction Act Implementation.
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