Highlighting the patient voice during discussions about reforming policies impacting Prescription Benefit Managers (PBM). Highlighting the importance of FDA policies on patients with rare diseases. Efforts to extend the Marketplace enhanced Premium Tax Credit.
2025 · 3rd Quarter (July 1 - Sep 30)
CYSTIC FIBROSIS FOUNDATION
Filed by THORN RUN PARTNERS.
Open official filingSource-reported fields
Filing overview
- Type
- 3rd Quarter - Report
- Posted
- Oct 20, 2025
- Income
- $30,000.00
- Expenses
- Not reported
- Registrant
- THORN RUN PARTNERS
- Filing UUID
- 37e164d5-14e3-44bb-9c07-8fa6f7afb8e0
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
Expanding access and protecting against funding cuts to Medicaid and Medicare and ensuring it supports individuals living with CF. Efforts to extend the Marketplace enhanced Premium Tax Credit.
Relationship and amount limits
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