NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)

MMM · Medicare/Medicaid

Implementation of H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Issues related to 1115 of the Social Security Act; policies related to work requirements in Medicaid Comments on RE: CMS-5545-P: Global Benchmark for Efficient Drug Pricing (GLOBE) Model Comments on CMS-5546-P: Guarding U.S. Medicare Against Rising Drug Costs (GUARD) Model

Literal federal measure citations: H.R. 1

HCR · Health Issues

Blood and plasma safety and awareness Bleeding disorders awareness

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46, HR 1834 Comments on Proposed Rule: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2027; and Basic Health Program (CMS-9883-P)

Literal federal measure citations: H.R. 1, S. 864, H.R. 6423, HR 247, HR 1, HR 5371, S 46, HR 1834

BUD · Budget/Appropriations

Funding for federal hemophilia programs in FY26 and FY27 House and Senate Labor-HHS Appropriations bills NIH FY26 and FY27 appropriations

PHA · Pharmacy

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program

MED · Medical/Disease Research/Clinical Labs

Hemophilia research, prevention, surveillance and service programs and issues; advancing care for women and girls with bleeding disorders