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2026 · 3rd Quarter (July 1 - Sep 30)

THE HEMOPHILIA ALLIANCE

Filed by ARTEMIS POLICY GROUP LLC.

Open official filing
Source: Lobbying Disclosure APIRecently refreshed. 2026-11-02 06:26:10 UTC.

Source-reported fields

Filing overview

Type
3rd Quarter - Report
Posted
Oct 19, 2026
Income
$30,000.00
Expenses
Not reported
Filing UUID
4ddd2128-5d27-4131-b913-971f9d605833
Termination date
Not reported

Literal source text

Lobbying issues and bill citations

MMM · Medicare/Medicaid

Issues related to reimbursement for hemophilia services and treatments in Medicare: comments on proposed HOPPS rule (CMS-1850-P) Issues related to reimbursement for hemophilia services and treatments in Medicaid Implementation of H.R. 1, One Big Beautiful Bill Act Implementation of Medicaid Community Engagement requirements: comments on Medicaid community engagement IFR (CMS-2454-IFC)

Literal federal measure citations: H.R. 1

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Affordable Care Act implementation Coverage of hemophilia treatments and services in private insurance plans: comments on essential health benefits review, RIN 0938-AW02 Policies related to co-pay accumulators and maximizers, including the HELP Copays Act (S 864, HR 6423) Policies related to the operations of pharmacy benefits managers Private insurance policies that discriminate coverage for high-cost drugs and use of patient assistance programs, also known as Alternative Funding Programs

Literal federal measure citations: H.R. 1, S 864, HR 6423

PHA · Pharmacy

Issues related to participation in the 340B Drug Discount Program Polices related to PBMs and drug cost transparency 340B Drug Pricing Integrity and Affordability for Patients Act discussion draft SECURE 340B Act, HR 9599 SUSTAIN 340B Act, S. 5244 Comments on Senate Finance Committee RFI on drug pricing

Literal federal measure citations: HR 9599, S. 5244

BUD · Budget/Appropriations

Funding for federal hemophilia programs at CDC and HRSA for FY27 Funding and staffing for the CDC Division of Blood Disorders and Public Health Genomics: Letter to CDC Director Erica Schwartz re Division of Blood Disorders & Public Health Genomics

Relationship and amount limits

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