NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)

BUD · Budget/Appropriations

Funding for federal hemophilia programs in FY27 House and Senate Labor-HHS Appropriations bills NIH FY27 appropriations

PHA · Pharmacy

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program 340B Drug Pricing Integrity and Affordability for Patients Act discussion draft

MED · Medical/Disease Research/Clinical Labs

Hemophilia research, prevention, surveillance and service programs and issues; advancing care for women and girls with bleeding disorders

MMM · Medicare/Medicaid

Implementation of H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Implementation of Medicaid Community Engagement requirements Issues related to 1115 of the Social Security Act; policies related to work requirements in Medicaid

Literal federal measure citations: H.R. 1

HCR · Health Issues

Blood and plasma safety and awareness Bleeding disorders awareness Fostering Effective Diagnosis and Treatment for Underserved Populations (FED UP) with Bleeding Disorders Act (H.R. 8794)

Literal federal measure citations: H.R. 8794

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the operations of pharmacy benefits managers: comments on proposed rules re PBM transparency (EBSA-2026-0001) and prior authorization for prescription drugs (CMS-0062-P)

Literal federal measure citations: H.R. 1, S. 864, H.R. 6423