Highlighting the patient voice during discussions about reforming policies impacting Prescription Benefit Managers (PBM). Highlighting the importance of FDA policies on patients with rare diseases.
2025 · 1st Quarter (Jan 1 - Mar 31)
CYSTIC FIBROSIS FOUNDATION
Filed by THORN RUN PARTNERS.
Open official filingSource-reported fields
Filing overview
- Type
- 1st Quarter - Report
- Posted
- Apr 17, 2025
- Income
- $30,000.00
- Expenses
- Not reported
- Registrant
- THORN RUN PARTNERS
- Filing UUID
- 58a37840-d8c4-40b3-8b47-00219a5c195e
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
Expanding access and protecting against funding cuts to Medicaid and Medicare and ensuring it supports individuals living with CF.
Relationship and amount limits
Bill links use only the filing year’s mathematically derived Congress plus the literal measure type and number in the issue description. Unmatched citations remain plain text. Politically.com does not join on names, infer advocacy positions, combine amendments, or calculate totals across filings.