2026 · 3rd Quarter (July 1 - Sep 30)

RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)

Filed by RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES).

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Source-reported fields

Filing overview

Type: 3rd Quarter - Report
Posted: Oct 16, 2026
Income: Not reported
Expenses: $60,000.00
Registrant: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
Client: RARE FOUNDATION (FORMERLY KNOWN AS EVERYLIFE FOUNDATION FOR RARE DISEASES)
Filing UUID: 712c3c0b-0f09-4eeb-9605-0230881b4aae
Termination date: Not reported

Expense method: A

Literal source text

Lobbying issues and bill citations

HCR · Health Issues

S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations; FDA user fee reauthorization; H.R. 7118 - Genomic Answers for Children's Health Act; H.R. 5509, S. 2903 - Safe Step Act; H.R. 1414 - Cameron's Law; H.R. 10359 - Priority for Pediatric Cures Act

Literal federal measure citations: S. 822, H.R. 1532, H.R. 4709, H.R. 7118, H.R. 5509, S. 2903, H.R. 1414, H.R. 10359

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