Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act.
2025 · 2nd Quarter (Apr 1 - June 30)
EVERYLIFE FOUNDATION FOR RARE DISEASES
Filed by FAEGRE DRINKER BIDDLE & REATH LLP.
Open official filingSource-reported fields
Filing overview
- Type
- 2nd Quarter - Report
- Posted
- Jul 17, 2025
- Income
- $20,000.00
- Expenses
- Not reported
- Registrant
- FAEGRE DRINKER BIDDLE & REATH LLP
- Filing UUID
- 7c8d400f-e042-45dd-928c-a0f8e6da06ae
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
Literal federal measure citations: H.R. 1
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
Literal federal measure citations: H.R. 1509, S. 752, H.R. 1
Relationship and amount limits
Bill links use only the filing year’s mathematically derived Congress plus the literal measure type and number in the issue description. Unmatched citations remain plain text. Politically.com does not join on names, infer advocacy positions, combine amendments, or calculate totals across filings.