2025 · 3rd Quarter (July 1 - Sep 30)

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filed by NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD).

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Source-reported fields

Filing overview

Type: 3rd Quarter - Report
Posted: Oct 21, 2025
Income: Not reported
Expenses: $60,000.00
Registrant: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
Filing UUID: 89d89b13-0db4-4b5e-a442-9a23e2b8ec41
Termination date: Not reported

Expense method: B

Literal source text

Lobbying issues and bill citations

HCR · Health Issues

Rare Disease Initiatives. Priority Review Voucher Reauthorization. Newborn Screening.

MMM · Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases.

PHA · Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Prescription Drug User Fee Act (PDUFA) Reauthorization. PRV Reauthorization. Promising Pathways Act 2.0. Public Law 119-21: One Big Beautiful Bill Act.

BUD · Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations. FDA Appropriations.

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