NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)

MMM · Medicare/Medicaid

Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Issues related to 1115 Waivers in Medicaid Preserving and expanding access to Medicaid

HCR · Health Issues

Blood and plasma safety and awareness Bleeding disorders awareness

INS · Insurance

Implementation of the Affordable Care Act The HELP Copays Act (HR 864) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to PBM regulation Healthcare Affordability Act of 2024 (H.R. 9774 / S. 5194) Policies related to the extension of enhanced advanced premium tax credits Protect patients from substandard and junk insurance products House Ways and Means Committee Request for Information - Tax Priorities Patient Protection and Affordable Care Act; HHS Proposed Marketplace Integrity and Affordability Rule (CMS-9884-P)

Literal federal measure citations: HR 864, H.R. 9774, S. 5194

BUD · Budget/Appropriations

Funding for federal hemophilia programs in FY25 House and Senate Labor-HHS Appropriations bills NIH FY25 appropriations

PHA · Pharmacy

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program

MED · Medical/Disease Research/Clinical Labs

Hemophilia research, prevention, surveillance and service programs and issues Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act (H.R. 1796/S. 735)

Literal federal measure citations: H.R. 1796, S. 735