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2026 · 3rd Quarter (July 1 - Sep 30)

NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)

Filed by ARTEMIS POLICY GROUP LLC.

Open official filing
Source: Lobbying Disclosure APIRecently refreshed. 2026-11-02 06:26:10 UTC.

Source-reported fields

Filing overview

Type
3rd Quarter - Report
Posted
Oct 19, 2026
Income
$50,000.00
Expenses
Not reported
Filing UUID
9e37f88d-18ea-496a-b230-f134a5e526c8
Termination date
Not reported

Literal source text

Lobbying issues and bill citations

MMM · Medicare/Medicaid

Implementation of H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Implementation of Medicaid Community Engagement requirements Issues related to 1115 of the Social Security Act; policies related to work requirements in Medicaid: comments on Medicaid community engagement IFR (CMS-2454-IFC)

Literal federal measure citations: H.R. 1

HCR · Health Issues

Blood and plasma safety and awareness Bleeding disorders awareness Fostering Effective Diagnosis and Treatment for Underserved Populations (FED UP) with Bleeding Disorders Act (H.R. 8794)

Literal federal measure citations: H.R. 8794

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Comment letter in response to CMS IFR re Medicaid Program: Community Engagement Requirement for Certain Individuals Comment letter in response to Request for Information; Comprehensive Review of the Essential Health Benefits Framework and Typical Employer Plan Standard Sign on letter re No Surprises Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs

Literal federal measure citations: H.R. 1, S. 864, H.R. 6423

BUD · Budget/Appropriations

Funding for federal hemophilia programs in FY27 House and Senate Labor-HHS Appropriations bills Funding and staffing for the CDC Division of Blood Disorders and Public Health Genomics Letter to CDC Director Erica Schwartz re Division of Blood Disorders & Public Health Genomics NIH FY27 appropriations

PHA · Pharmacy

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program 340B Drug Pricing Integrity and Affordability for Patients Act discussion draft

MED · Medical/Disease Research/Clinical Labs

Hemophilia research, prevention, surveillance and service programs and issues; advancing care for women and girls with bleeding disorders Letter to OMB re Regulation for Federal Financial Assistance

Relationship and amount limits

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