Literal source text
Lobbying issues and bill citations
MMM · Medicare/Medicaid
Implementation of H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Implementation of Medicaid Community Engagement requirements Issues related to 1115 of the Social Security Act; policies related to work requirements in Medicaid: comments on Medicaid community engagement IFR (CMS-2454-IFC)
Literal federal measure citations: H.R. 1
HCR · Health Issues
Blood and plasma safety and awareness Bleeding disorders awareness Fostering Effective Diagnosis and Treatment for Underserved Populations (FED UP) with Bleeding Disorders Act (H.R. 8794)
Literal federal measure citations: H.R. 8794
INS · Insurance
Implementation of H.R. 1, One Big Beautiful Bill Act Comment letter in response to CMS IFR re Medicaid Program: Community Engagement Requirement for Certain Individuals Comment letter in response to Request for Information; Comprehensive Review of the Essential Health Benefits Framework and Typical Employer Plan Standard Sign on letter re No Surprises Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs
Literal federal measure citations: H.R. 1, S. 864, H.R. 6423
BUD · Budget/Appropriations
Funding for federal hemophilia programs in FY27 House and Senate Labor-HHS Appropriations bills Funding and staffing for the CDC Division of Blood Disorders and Public Health Genomics Letter to CDC Director Erica Schwartz re Division of Blood Disorders & Public Health Genomics NIH FY27 appropriations
PHA · Pharmacy
Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program 340B Drug Pricing Integrity and Affordability for Patients Act discussion draft
MED · Medical/Disease Research/Clinical Labs
Hemophilia research, prevention, surveillance and service programs and issues; advancing care for women and girls with bleeding disorders Letter to OMB re Regulation for Federal Financial Assistance