Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 1796/S. 735) Policies related to the social security disability programs, including National Academies of Science Education and Medicine Review of sickle cell disease criteria for social security disability programs. Letter in response to HRSA RFI on Sickle Cell Disease Treatment Demonstration Program
2025 · 1st Quarter (Jan 1 - Mar 31)
SICKLE CELL DISEASE ASSOCIATION OF AMERICA
Filed by ARTEMIS POLICY GROUP LLC.
Open official filingSource-reported fields
Filing overview
- Type
- 1st Quarter - Report
- Posted
- Apr 21, 2025
- Income
- $20,000.00
- Expenses
- Not reported
- Registrant
- ARTEMIS POLICY GROUP LLC
- Filing UUID
- ae07ee01-bc25-49f8-8b80-3f07f89fac09
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721) Accelerating Kids Access to Care Act (H.R. 1509/S. 752) Medicaid eligibility and coverage for needed services for people living with sickle cell disease
Literal federal measure citations: S. 721, H.R. 1509, S. 752
Funding for federal sickle cell disease programs FY25 and FY26 House and Senate Labor-HHS Appropriations bills
Relationship and amount limits
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