SICKLE CELL DISEASE ASSOCIATION OF AMERICA

HCR · Health Issues

Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 1796/S. 735)

Literal federal measure citations: H.R. 1796, S. 735

MMM · Medicare/Medicaid

Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721/H.R. 5178) Medicaid eligibility and coverage for needed services for people living with sickle cell disease Implementation of H.R. 1, One Big Beautiful Bill Act Issues relating to medical listings of impairment for sickle cell disease for SSDI and SSI

Literal federal measure citations: S. 721, H.R. 5178, H.R. 1

BUD · Budget/Appropriations

Funding for federal sickle cell disease programs FY26 House and Senate Labor-HHS Appropriations bills FY27 House and Senate Labor-HHS Appropriations H.R. 8067, Candis King Hope for Sickle Cell Families Act

Literal federal measure citations: H.R. 8067

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46.

Literal federal measure citations: H.R. 1, HR 247, HR 1, HR 5371, S 46