ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

BUD · Budget/Appropriations

H.R.9260: Labor, Health and Human Services, Education, and Related Agencies FY 2027 No bill number, Senate: Defense FY 2027

Literal federal measure citations: H.R.9260

HCR · Health Issues

HR 8792/S.4513: Multigenerational Caregivers Data Act HR 6766/S3492: Essential Caregivers Act HR 2036/S 925 Credit for Caring Act Docket No. FDA-2026-P-3666-0001: Requests that the FDA codify, regularize, and transparently administer a principle the Agency already recognizes in practice: that the adequacy of an investigation in rare diseases cannot be determined by default assumptions alone. It does not ask FDA to invent a new principle or apply distinct evidentiary thresholds or concessions to rare disease research programs. Drug Repurposing for Unmet Medical Needs; Request for Information (FDA-2026-N-4492) Impacts of Patient-Focused Drug Development Meetings; Establishment of a Public Docket; Request for Information and Comment (FDA-2026-N-3947)

Literal federal measure citations: HR 8792, S.4513, HR 6766, S3492, HR 2036, S 925

MED · Medical/Disease Research/Clinical Labs

HR 2036 HEALTHY BRAINS Act NOT-OD-26-047: Inviting Comments and Suggestions on a Framework for the NIH-Wide Strategic Plan for Fiscal Years 2027-2031

Literal federal measure citations: HR 2036