2025 · 2nd Quarter (Apr 1 - June 30)

NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)

Filed by NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD).

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Source-reported fields

Filing overview

Type: 2nd Quarter - Amendment
Posted: Jul 23, 2025
Income: Not reported
Expenses: $60,000.00
Registrant: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
Client: NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
Filing UUID: c501654c-498c-471e-a6c9-8b09f31492bb
Termination date: Not reported

Expense method: B

Literal source text

Lobbying issues and bill citations

HCR · Health Issues

Rare Disease Initiatives. Affordable Care Act (ACA) Issues and Enhancements. Priority Review Voucher Reauthorization. Newborn Screening.

MMM · Medicare/Medicaid

Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.

PHA · Pharmacy

Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. RARE Act. Inflation Reduction Act Implementation. PRV Reauthorization. H.R.1414: Camerons Law. Promising Pathways Act 2.0.

Literal federal measure citations: H.R.1414

BUD · Budget/Appropriations

Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations. Advanced Research Projects Agency - Health (ARPA-H) Appropriations. NIH / FDA Appropriations. HHS RIFs.

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