2025 end-of-year healthcare package including reauthorization of the Pediatric Priority Review Voucher; legislation pertaining to FDA approval pathways; Implementation of FDA Rare Disease Innovation Hub.
2025 · 1st Quarter (Jan 1 - Mar 31)
EVERYLIFE FOUNDATION FOR RARE DISEASES
Filed by FAEGRE DRINKER BIDDLE & REATH LLP.
Open official filingSource-reported fields
Filing overview
- Type
- 1st Quarter - Report
- Posted
- Apr 10, 2025
- Income
- $20,000.00
- Expenses
- Not reported
- Registrant
- FAEGRE DRINKER BIDDLE & REATH LLP
- Filing UUID
- c6bcd724-8208-44b5-baaf-e1a542a22c65
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities.
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation.
Relationship and amount limits
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