NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)

MMM · Medicare/Medicaid

H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Issues related to 1115 and 1332 of the Social Security Act; policies related to work requirements, reinsurance and block grants in Medicaid

Literal federal measure citations: H.R. 1

HCR · Health Issues

Blood and plasma safety and awareness Bleeding disorders awareness

INS · Insurance

H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46, HR 1834. Protect patients from substandard and junk insurance products

Literal federal measure citations: H.R. 1, S. 864, H.R. 6423, HR 247, HR 1, HR 5371, S 46, HR 1834

BUD · Budget/Appropriations

Funding for federal hemophilia programs in FY26 House and Senate Labor-HHS Appropriations bills NIH FY26 appropriations

PHA · Pharmacy

Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program

MED · Medical/Disease Research/Clinical Labs

Hemophilia research, prevention, surveillance and service programs and issues