2025 · 2nd Quarter (Apr 1 - June 30)
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H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Issues related to 1115 Waivers in Medicaid Preserving and expanding access to Medicaid
Literal federal measure citations: H.R. 1
Blood and plasma safety and awareness Bleeding disorders awareness
H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the extension of enhanced advanced premium tax credits Protect patients from substandard and junk insurance products Patient Protection and Affordable Care Act; HHS Proposed Marketplace Integrity and Affordability Rule (CMS-9884-P)
Letter to Secretary Kennedy regarding the reductions in force at the Centers for Disease Control and Preventions Division of Blood Disorders and Public Health Genomics Funding for federal hemophilia programs in FY25 House and Senate Labor-HHS Appropriations bills NIH FY25 appropriations
Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program
Hemophilia research, prevention, surveillance and service programs and issues
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