Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD)
2026 · 2nd Quarter (Apr 1 - June 30)
ULTRAGENYX PHARMACEUTICAL INC.
Filed by ALPINE GROUP PARTNERS, LLC..
Open official filingSource-reported fields
Filing overview
- Type
- 2nd Quarter - Report
- Posted
- Jul 20, 2026
- Income
- $60,000.00
- Expenses
- Not reported
- Registrant
- ALPINE GROUP PARTNERS, LLC.
- Filing UUID
- d7fb34fe-9f1f-4f43-bf8a-6ed787a9dab9
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD)
Monitoring FDA user fee regulation, including priority review voucher reauthorization; legislation around screening efforts for newborns and ultra-rare diseases like Sanfilippo syndrome Type A, Duchenne Muscular Dystrophy (DMD), and Metachromatic Leukodystrophy (MLD)
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