Rare Disease Initiatives. Priority Review Voucher Reauthorization. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.
2026 · 1st Quarter (Jan 1 - Mar 31)
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
Filed by NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD).
Open official filingSource-reported fields
Filing overview
- Type
- 1st Quarter - Report
- Posted
- Apr 15, 2026
- Income
- Not reported
- Expenses
- $80,000.00
- Filing UUID
- e2d6803c-17c1-4bf0-a035-094648a14c9e
- Termination date
- Not reported
Expense method: B
Literal source text
Lobbying issues and bill citations
Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.
Pharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. Inflation Reduction Act Implementation.
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