Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act; Activities related to PDUFA VIII.
2025 · 3rd Quarter (July 1 - Sep 30)
EVERYLIFE FOUNDATION FOR RARE DISEASES
Filed by FAEGRE DRINKER BIDDLE & REATH LLP.
Open official filingSource-reported fields
Filing overview
- Type
- 3rd Quarter - Report
- Posted
- Oct 17, 2025
- Income
- $10,000.00
- Expenses
- Not reported
- Registrant
- FAEGRE DRINKER BIDDLE & REATH LLP
- Filing UUID
- f01ec5ac-464f-42a2-8cbb-e62db17c1141
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
Literal federal measure citations: H.R. 1
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
Literal federal measure citations: H.R. 1509, S. 752, H.R. 1
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