Reauthorization of Pediatric Priority Review Voucher and the Consolidated Appropriations Act; Rare Disease Congressional Caucus; concerns regarding FDA review of rare disease therapies; hearing preparations.
2026 · 1st Quarter (Jan 1 - Mar 31)
EVERYLIFE FOUNDATION FOR RARE DISEASES
Filed by FAEGRE DRINKER BIDDLE & REATH LLP.
Open official filingSource-reported fields
Filing overview
- Type
- 1st Quarter - Report
- Posted
- Apr 17, 2026
- Income
- $40,000.00
- Expenses
- Not reported
- Registrant
- FAEGRE DRINKER BIDDLE & REATH LLP
- Filing UUID
- f32281ff-6a59-4ca9-95ca-bbece6441ae9
- Termination date
- Not reported
Literal source text
Lobbying issues and bill citations
FY 27 rare disease policy and programmatic requests pertaining to rare disease therapy development and research.
Accelerating Kids Access to Care Act (S.752/H.R. 1509) and the Consolidated Appropriations Act.
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