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2026 · 3rd Quarter (July 1 - Sep 30)

SICKLE CELL DISEASE ASSOCIATION OF AMERICA

Filed by ARTEMIS POLICY GROUP LLC.

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Source: Lobbying Disclosure APIRecently refreshed. 2026-10-28 06:26:13 UTC.

Source-reported fields

Filing overview

Type
3rd Quarter - Report
Posted
Oct 19, 2026
Income
$20,000.00
Expenses
Not reported
Filing UUID
f3a0c42a-4697-47ac-a3a2-325005eaa22c
Termination date
Not reported

Literal source text

Lobbying issues and bill citations

HCR · Health Issues

Potential legislation on hospital emergency department care of people with sickle cell disease Education and support for Congressional Sickle Cell Disease Caucus Sickle Cell Disease Treatment Centers Act, S. 5488/HR 10531 Sickle Cell Care Expansion Act, S. 5489 Meeting with Department of HHS, Office of Minority Health

Literal federal measure citations: S. 5488, HR 10531, S. 5489

MMM · Medicare/Medicaid

Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721/H.R. 5178) Medicaid eligibility and coverage for needed services for people living with sickle cell disease Implementation of Medicaid Community Engagement provisions of HR 1

Literal federal measure citations: S. 721, H.R. 5178, HR 1

BUD · Budget/Appropriations

Funding for federal sickle cell disease programs Funding and staffing for the CDC Division of Blood Disorders and Public Health Genomics Letter to CDC Director Erica Schwartz re Division of Blood Disorders & Public Health Genomics Funding for and continuation of HRSAs Sickle Cell Disease Newborn Screening Follow Up Program Letter to Secretary Kennedy re HRSA SCD Newborn Screening Follow Up Program FY27 House and Senate Labor-HHS Appropriations

INS · Insurance

Implementation of H.R. 1, One Big Beautiful Bill Act Comment letter in response to CMS IFR re Medicaid Program: Community Engagement Requirement for Certain Individuals Policies related to Medicaid and ACA Marketplace plans

Literal federal measure citations: H.R. 1

Relationship and amount limits

Bill links use only the filing year’s mathematically derived Congress plus the literal measure type and number in the issue description. Unmatched citations remain plain text. Politically.com does not join on names, infer advocacy positions, combine amendments, or calculate totals across filings.