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California 20252026

SB 1047

Neurodegenerative disease registry program.

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Source: Open States / PluralUpdated 2026-09-12 13:12:55 UTC.

Official record

Measure details

Jurisdiction
California
Session
20252026
Chamber
upper
Classification
bill
Subjects
Neurodegenerativediseaseregistryprogram
Introduced / first action
2026-02-12 00:00:00

Source-supplied abstracts

Existing law, until January 1, 2028, and to the extent funds are made available for these purposes, requires the State Department of Public Health to establish a system for the collection of information determining the incidence and prevalence of neurodegenerative diseases, including, but not limited to, amyotrophic lateral sclerosis (ALS) , also known as Lou Gehrig's disease. Existing law requires a hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment to a patient for a neurodegenerative disease to report each case of a neurodegenerative disease to the department, as prescribed. Existing law requires the department to designate the specified neurodegenerative diseases required to be reported in the state or any part of the state. Existing law specifies that for this purpose, "neurodegenerative disease" may include, but need not be limited to, Alzheimer's disease, multiple sclerosis, and Huntington's disease. This bill would require the department to establish a system for the collection of information determining the incidence and prevalence of frontotemporal degeneration (FTD) . This bill would specify that "neurodegenerative disease" may also include other dementias. The bill would extend the requirements of these provisions until January 1, 2032.

Sponsors

Source-supplied history

Actions

  1. Enrolled and presented to the Governor at 3 p.m.

    executive-receipt

  2. Assembly amendments concurred in. (Ayes 39. Noes 0.) Ordered to engrossing and enrolling.

    amendment-passage, committee-passage, committee-passage-favorable

  3. Ordered to special consent calendar.

  4. In Senate. Concurrence in Assembly amendments pending.

  5. Read third time. Passed. (Ayes 76. Noes 0. Page 6393.) Ordered to the Senate.

    passage, reading-1, reading-3

  6. Ordered to third reading.

    reading-1, reading-3

  7. Read third time and amended.

    amendment-passage, reading-1, reading-3

  8. Read second time. Ordered to third reading.

    reading-1, reading-2, reading-3

  9. From committee: Do pass. (Ayes 15. Noes 0.) (August 13).

    committee-passage, committee-passage-favorable

  10. Assembly Rule 63 suspended.

  11. July 1 set for first hearing. Placed on suspense file.

  12. From committee: Do pass and re-refer to Com. on APPR. with recommendation: To consent calendar. (Ayes 15. Noes 0.) (June 16). Re-referred to Com. on APPR.

    committee-passage, committee-passage-favorable, referral-committee

  13. Referred to Com. on HEALTH.

    referral-committee

  14. In Assembly. Read first time. Held at Desk.

    reading-1

  15. Read third time. Passed. (Ayes 39. Noes 0. Page 4525.) Ordered to the Assembly.

    passage, reading-1, reading-3

  16. Ordered to special consent calendar.

  17. Read second time. Ordered to third reading.

    reading-1, reading-2, reading-3

  18. Read second time and amended. Ordered to second reading.

    amendment-passage, reading-1, reading-2

  19. From committee: Do pass as amended. (Ayes 7. Noes 0. Page 4262.) (May 14).

    amendment-passage, committee-passage, committee-passage-favorable

  20. Set for hearing May 14.

  21. April 13 hearing: Placed on APPR. suspense file.

  22. Set for hearing April 13.

  23. Read second time and amended. Re-referred to Com. on APPR.

    amendment-passage, reading-1, reading-2, referral-committee

  24. From committee: Do pass as amended and re-refer to Com. on APPR. with recommendation: To consent calendar. (Ayes 11. Noes 0. Page 3690.) (March 25).

    amendment-passage, committee-passage, committee-passage-favorable, referral-committee

  25. Set for hearing March 25.

  26. Referred to Com. on HEALTH.

    referral-committee

  27. From printer. May be acted upon on or after March 15.

  28. Introduced. Read first time. To Com. on RLS. for assignment. To print.

    introduction, reading-1, referral-committee

When supplied by the API

Related measures

No resolvable related measure is supplied.